Built with the Huntington's disease community.
Fenix Health is a free platform designed to help people affected by Huntington's disease discover and better understand clinical research opportunities.
Before we continue developing the platform, we want to ensure it genuinely reflects the needs of the community it's built to serve.
Our goal is to collect 500 pieces of community feedback to help shape the future of Fenix Health.
Every piece of feedback is reviewed and directly influences what we build next.
Community voices
0 people have already helped shape Fenix Health.
Will you be number 1?
Every improvement starts with community feedback.
Around 10 minutes • Free • No sign-up required
Why take part?
Your feedback shapes what Fenix becomes next.
Improve Fenix Health for the Huntington's disease community.
Make clinical research easier to discover and understand.
Influence future improvements.
Help build a platform designed around real community feedback.
How it works
Around 10 minutes.
- 1
Complete the questionnaire
Help Fenix understand your situation.
- 2
Explore your recommended research studies
See how Fenix matches studies to your questionnaire responses.
- 3
Share your feedback
Tell us honestly what worked well and what could be improved.
Built with community feedback
A living timeline of improvements made because of community suggestions.
The 'Local / National / International' filter didn't feel meaningful.
We redesigned the location step around country and travel willingness, and now prioritise studies recruiting where you live.
It was hard to tell whether a study was actually relevant to me.
We added a personalised 'Why this study may be relevant to you' explanation based on your questionnaire responses.
Some official study summaries were confusing or missing entirely.
We improved how we read summaries from clinical trial registries and added a plain-English explanation option.
Ready to help shape Fenix Health?
It only takes around 10 minutes and your feedback goes directly to the team building Fenix.
Every feature you see in Fenix has the potential to be improved by someone in the community. Yours could be next.